All Treats

Jake and Lucy are home today… no school. We may head to the Cal Academy of Sciences

if we can get it together. It’s chillier this morning and it’s rainy and overcast.. and Californians are bad drivers who cannot figure out how to drive in the rain after all these years, so I am always loathe to get on a highway but this is all beside the point…

Jake said “Trick or Treat”.

Jake SAID “TRICK OR TREAT”!

His bus driver told me that he said it on the bus yesterday afternoon. His teacher was talking with all of the kids as they were being pinned down. buckled in.

She asked the kids “Who’s going to say Trick or Treat?” and they were answering, and Jake at the front of the bus said “I say trick or treat.”

and from the back of the bus his driver, who speaks English as a second language, said “Jake! I heard you say trick or treat.” and ran up and hugged him.

She told me all about it when they arrived in front of our house, and I mostly believed her, and wanted to encourage Jake so I asked him if he had said it… and he smiled and giggled!

then

this morning I asked him, when it was just the two of us lounging on my bed, “When we go out to night to get candy, what do you say?”

and he said “trick or treat” and he smiled.

*************************

appropriate language, answering a question, responding to a general query put out to a group, 

timely responses 

what’s happening? is he talking more often? will there be more?

hope is such a painful wonderful emotion.

"I’ll Miss You Daddy"

Yup. That’s what our two year old said as she hugged Daddy one last time. She packed her Princess purse (thanks a LOT Squid) with her keys (an old key attached to an old doggie collar tag, her cell phone (princess phone stolen from cousin Bubsy), a kitchen timer shaped like an ice cream cone (a “time out timer” from Monster, we keep calling it a cupcake) and a small zebra.

Lucy gave her brother a hug, sat in my lap and held me, then marched out to the car. She waved good bye from her car sear, asked Papa to “Turn engine on please.” for the A/C and they left for the week. That is one independent kid.

I cried a little. A little because I will miss her. A little because my “baby” is able to be without me for a week!

and a little because she was able to tell me she loves me and tell her Daddy that he will be missed. Those last two are a few messages we don’t get to hear from Jake, though I know he thinks them. I am just so thankful that Lucy can communicate all of her emotions. It seems silly perhaps, but today, again, it feels like I have witnessed something amazing.

Jake walked everyone out to the gate, and initiated goodbye to his Papa. He is getting very good at ducking into people’s arms for a small cuddle. Friends and family have noticed him initiating this more and more. He build relationship in his own way with each person.

When my dad left this morning Jake walked to the door too. Now it may be that he just knows he has a chance to escape, but I think he really is becoming a part of the good bye process without needing prompting. It was so nice to have BIAD here. We went crazy at the teacher supply store buying Lucy her birthday presents (art supplies, enough for a preschool), and he got to meet a bunch of people I know, even Sage made it back from Tahoe in time to meet him. He got to see Lucy swim and drop Jake off at school, eat Amici’s pizza (one of our favorites) and help me pick out a new coffee maker. He also relaxed on the couch and read a few books, which is probably exactly what he needed.

Now back to packing Jake for camp. My house is suddenly very very quiet. It is still very hot, and we saw lightning in the distance. Hoping Jake’s camp remains fire-free this summer.

Is It Friday? Well it Must be Since Jake’s Talking!

I just got a call from Janice, Jake’s amazing teacher. Happy Friday!

This morning on the playground during A-PE (adaptive phys-ed)

Anna: “Jake look, there’s the circle. There’s the square. There’s the triangle.”
Jake: “Triángulo”

for those of you who do not speak Spanish, that’s triangle. What’s even funnier is that Anna was speaking English to Jake but his echolalia was in Spanish…so does that still count or is that spontaneous language?

______________________________________________

and later today

The class went to get ice cream because it is hot today in Deadwood City. When they got back to the classroom, Jake ate all of his ice cream up lickety-split (no surprise there).

And then he ate the rest of Anna’s ice cream too.

Anna: “Jake, your ice cream is all gone.”
Jake: “NO.”

Janice: “Jake, would you like some of my ice cream?”
Jake: beginning calmly and ending with high-pitched happiness, “yeAH!”

a few minutes later…
Anna: “Jake, you should say ‘Thank you’ to Ms. Janice for giving you some of her ice cream.”
Jake: beginning slightly muffled then ending clearly…”Thank YOU!

parenting note: to encourage open communication with Jake I must
a) learn Spanish
and
b) carry ice cream on my person at all time.

Is It Friday? Well it Must be Since Jake’s Talking!

I just got a call from Janice, Jake’s amazing teacher. Happy Friday!

This morning on the playground during A-PE (adaptive phys-ed)

Anna: “Jake look, there’s the circle. There’s the square. There’s the triangle.”
Jake: “Triángulo”

for those of you who do not speak Spanish, that’s triangle. What’s even funnier is that Anna was speaking English to Jake but his echolalia was in Spanish…so does that still count or is that spontaneous language?

______________________________________________

and later today

The class went to get ice cream because it is hot today in Deadwood City. When they got back to the classroom, Jake ate all of his ice cream up lickety-split (no surprise there).

And then he ate the rest of Anna’s ice cream too.

Anna: “Jake, your ice cream is all gone.”
Jake: “NO.”

Janice: “Jake, would you like some of my ice cream?”
Jake: beginning calmly and ending with high-pitched happiness, “yeAH!”

a few minutes later…
Anna: “Jake, you should say ‘Thank you’ to Ms. Janice for giving you some of her ice cream.”
Jake: beginning slightly muffled then ending clearly…”Thank YOU!

parenting note: to encourage open communication with Jake I must
a) learn Spanish
and
b) carry ice cream on my person at all time.

Jake Goes To Camp

and so of course I am a freakazoid. Sage just took Lucy for the evening. I think Descartes and I may actually go see a movie.

I always get distressed when Jake goes to Camp.. even though he has been 5 times and it is a wonderful place and he LOVES it.. (and even said a high pitched squealy “YEAHHHHHH!” when a stranger asked him if he liked camp).

Also BQ’s little boy is in the hospital again and I just feel like there isn’t anything I can do for her. She has asked me to send her (via text) jokes of all kinds.. so if you have any good ones please put them in the comments section and I will text away later tonight.

Mamalicia said the other day “Everyone just seems really fragile these days, as if I must watch everything I say so as not to offend, or make someone cry.” I guess I am thinking that too. Everything just seems a bit delicate and breakable.

Jake Goes To Camp

and so of course I am a freakazoid. Sage just took Lucy for the evening. I think Descartes and I may actually go see a movie.

I always get distressed when Jake goes to Camp.. even though he has been 5 times and it is a wonderful place and he LOVES it.. (and even said a high pitched squealy “YEAHHHHHH!” when a stranger asked him if he liked camp).

Also BQ’s little boy is in the hospital again and I just feel like there isn’t anything I can do for her. She has asked me to send her (via text) jokes of all kinds.. so if you have any good ones please put them in the comments section and I will text away later tonight.

Mamalicia said the other day “Everyone just seems really fragile these days, as if I must watch everything I say so as not to offend, or make someone cry.” I guess I am thinking that too. Everything just seems a bit delicate and breakable.

Let’s See, Where Have I Been?

Well, there was a massive migraine this weekend. The kind that includes throwing up..bile….yum. And what else? Oh yeah. Rats. Yes, rats.

Call PETA. I killed two of them in the last week. There is a long story there that includes the fact that my 6’5″ husband is really, very disturbed by rats, dead or alive. That puts me (voluntarily) in charge of rat clean up. He is really a wonderful husband and father, so in this one area, it is my pleasure(?!) to take care of cleaning little bloody paw prints from our very own Remy off of the floor, and picking up his lifeless body after it has been ferociously snapped by my baited trap.

Rats in your kitchen suck. If you have never had a rat in your kitchen consider yourself the luckiest person in the world. Our neighbors removed a ton of brush from their front yard (big bushes and 500 + square feet of juniper). It is better for the neighborhood to remove the habitat, but in a pinch, it turns out that the space behind the kitchen baseboards in my house makes a decent enough home for two rats for a week. I am normally a generous hostess.

We spent nearly all day on Sunday removing the baseboards, then taking wire mesh and stapling it up under the kitchen cabinets so that the 1 1/2″ opening was sealed. I then crawled under the back kitchen window box and discovered where they were coming in and sealed it up with steel wool and more fine metal mesh. Let us pray that there were a)only two of them b)if there were more than two, that they are all trapped outside the house and not inside and c)in the current torrential downpour the little buggers do not attempt to get in our home through any other narrow secret rat passage.

Perhaps I will recover soon and share more exciting things like:

• Jake pooped on the potty at school AGAIN!
• Lucy, at 20 months has begun speaking in 8-word sentences: “Mommy, I want to wash my hands please.”
• Descartes and I had a lovely first play date with a couple and their two children… where Jake’s (dis)abilites were neither feared nor obsessed over. We just had a plain old relaxing time. The mommy works with Descartes and the daddy is a kid watcher like me.. but he is a master home brewer.. play`dates are always better with beer!
• The backyard patio is done and Descartes has re-worked the pergola thingy and we have enough amps in the outside subp-panel to put a hot tub out there!
• Jake has been answering more questions with yeah and nah!

Let’s See, Where Have I Been?

Well, there was a massive migraine this weekend. The kind that includes throwing up..bile….yum. And what else? Oh yeah. Rats. Yes, rats.

Call PETA. I killed two of them in the last week. There is a long story there that includes the fact that my 6’5″ husband is really, very disturbed by rats, dead or alive. That puts me (voluntarily) in charge of rat clean up. He is really a wonderful husband and father, so in this one area, it is my pleasure(?!) to take care of cleaning little bloody paw prints from our very own Remy off of the floor, and picking up his lifeless body after it has been ferociously snapped by my baited trap.

Rats in your kitchen suck. If you have never had a rat in your kitchen consider yourself the luckiest person in the world. Our neighbors removed a ton of brush from their front yard (big bushes and 500 + square feet of juniper). It is better for the neighborhood to remove the habitat, but in a pinch, it turns out that the space behind the kitchen baseboards in my house makes a decent enough home for two rats for a week. I am normally a generous hostess.

We spent nearly all day on Sunday removing the baseboards, then taking wire mesh and stapling it up under the kitchen cabinets so that the 1 1/2″ opening was sealed. I then crawled under the back kitchen window box and discovered where they were coming in and sealed it up with steel wool and more fine metal mesh. Let us pray that there were a)only two of them b)if there were more than two, that they are all trapped outside the house and not inside and c)in the current torrential downpour the little buggers do not attempt to get in our home through any other narrow secret rat passage.

Perhaps I will recover soon and share more exciting things like:

• Jake pooped on the potty at school AGAIN!
• Lucy, at 20 months has begun speaking in 8-word sentences: “Mommy, I want to wash my hands please.”
• Descartes and I had a lovely first play date with a couple and their two children… where Jake’s (dis)abilites were neither feared nor obsessed over. We just had a plain old relaxing time. The mommy works with Descartes and the daddy is a kid watcher like me.. but he is a master home brewer.. play`dates are always better with beer!
• The backyard patio is done and Descartes has re-worked the pergola thingy and we have enough amps in the outside subp-panel to put a hot tub out there!
• Jake has been answering more questions with yeah and nah!

Aside from the Dragging Foot and the MRI

On Tuesday at school, Janet, Jake’s teacher decided that instead of Pierre waiting for all of the other children to get settled in on the bus, he, for once, would be able to get on first.

Pierre is in a wheelchair. Wheelchairs always go last. Pierre always waits, patiently and with a smile, but Janet decided that maybe the other kids could wait just a couple of times a week so Pierre could be first to load on to the bus.

You cannot load walking kids at the same time the wheelchair bay is open.. it is a four foot drop if someone makes a break for that back door, and besides, the wheelchair responsibilities occupy all of the bus driver’s attention for those few moments.

After explaining to the class that Pierre was going to go first and that they would all wait for their friend, Anna tried to get a head start and put Jake on the bus anyway while Pierre was getting loaded on. She was going to just buckle him in to save some time I suppose.

Anna walked Jake to the door of the bus. He took a step forward, then turned around,

looked Anna in the eyes

and said,

“No. Wait.”

He refused to get on the bus until Pierre was strapped in.

Why Can’t I get Any Help Around Here?

Just got a call from school.

Jake may have had a seizure..probably it was weird yawn (since he has been awake since 3 am), but they called and told me that he arched his back and his eyes rolled a little bit, so having not seen it myself.. the Doc will get a call.

in other news from school:

Each morning kids in Jake’s class have circle time. They walk to the board, select their name from the field of names and hand it to the teacher. Everyone cheers and says “Yay! You are at school!” or something like that. Jake does it too, and apparently chooses the correct name many times and is generally compliant and follows along and does it independently (his aide, Anna, stays in her seat).

This morning:
“Okay it’s Jake’s turn”
Jake gets up, walks halfway to the board (maybe a foot and a half). He stops and turns back around to his aide and SAYS
“Gubba,waging pho ewe ANNA!”.

the ‘Anna’ was VERY, very clear.

So they talked a bit about how Jake needs to be independent, and while Anna is his 1:1 aide she cannot do everything for him etc.

Jake walks to the board, picks out his name, hands it to teacher Janice.

The class cheered for him.

He turns, walks back to his chair but does not sit down. Instead he stands in front of Anna and says:

“Iba goma AGHHY art Nog Mutton” (no one could decipher this one) in an angry tone, stomped his foot, threw his arms up and down a few times then

sat down quietly.

The kid has a few opinions apparently.